
Registry-Supported Publications
USIDNET is proud of the publications emerging from registry data queries. These publications all utilized USIDNET V1 data.
Publication Policy
When data in the USIDNET Registry is used in any manner – publications, abstracts, meeting materials, or other forms of media released to the public – we ask that you please reference the USIDNET Publication Policy for appropriate procedure.
Title |
Author(s) |
|
Journal |
Yr. |
Vol. |
Pgs. |
Materne E, Zhou B, DiGiacomo D, Farmer JR, Fuleihan R, Sullivan KE, Cunningham-Rundles C, Ballas ZK, Suez D, Barmettler S; USIDNET Consortium. |
|
J Allergy Clin Immunol. Epub ahead of print. |
2024 |
|
|
|
McDonnell, J., Cousins, K., Younger, M.E.M. et al. |
|
J Clin Immunol |
2024 |
44 |
Article 86 |
|
Kilich G, Perelygina L, Sullivan KE. |
|
Immunol Rev. |
2024 |
322(1) |
113-137 |
|
Franzblau LE, Fuleihan RL, Cunningham-Rundles C, Wysocki CA. |
|
J Clin Immunol |
2023 |
44 |
Article 32 |
|
Correa-Jimenez O, Restrepo-Gualteros S, Nino G, Cunningham-Rundles C, Sullivan KE, Fuleihan RL, Gutierrez MJ. |
|
J Clin Immunol |
2023 |
43(8) |
2208-2220 |
|
Méndez Barrera, J.A., Rocha Guzmán, S., Hierro Cascajares, E., Garabedian, E.K., Fuleihan, R.L., Sullivan, K.E., & Lugo Reyes, S.O. |
|
J Clin Immunol |
2023 |
225 |
Article 109759 |
|
A Registry Study of 240 Patients with X-Linked Agammaglobulinemia Living in the USA |
Hernandez-Trujillo, V., Zhou, C., Scalchunes, C., Ochs, H.D., Sullivan, K.E., Cunningham-Rundles, C., Fuleihan, R.L., Bonilla, F.A., Petrovic, A., Rawlings, D.J. and de la Morena, M.T. |
|
J Clin Immunol |
2023 |
43(6) |
1468–1477 |
O'Toole, D, Groth, D, Wright, H, Bonilla, FA, Cunningham-Rundles, C, Sullivan, KE, Ochs HD, Marsh RA, Feuille E, Fuleihan, RL |
|
J Allergy Clin Immunol Pract |
2023 |
11(6) |
1945-1946 |
|
A Registry Study of 240 Patients with X-Linked Agammaglobulinemia Living in the USA |
Hernandez-Trujillo, V., Zhou, C., Scalchunes, C., Ochs, H.D., Sullivan, K.E., Cunningham-Rundles, C., Fuleihan, R.L., Bonilla, F.A., Petrovic, A., Rawlings, D.J. and de la Morena, M.T. |
|
J Clin Immunol |
2023 |
43(6) |
1468-1477 |
Inborn Errors of Immunity Associated With Type 2 Inflammation in the USIDNET Registry |
Smith KL, Dai D, Modi BP, Sara R, Garabedian E, Marsh RA, Puck J, Secord E, Sullivan KE, Turvey SE, Biggs CM, USIDNET Consortium |
|
Front Immunol |
2022 |
13 |
Article 831279 |
LaBere B, Gutierrez MJ, Wright H, Garabedian E, Ochs HD, Fuleihan RL, Secord E, Marsh R, Sullivan, KE, Cunningham-Rundles C, Notarangelo LD, Chen K |
|
J Allergy Clin Immunol Pract |
2022 |
10(5) |
1325-1333.e5 |
|
Morbidity, Mortality, and Therapeutics in Combined Immunodeficiency: Data from the USIDNET Registry |
Durkee-Shock J, Zhang A, Liang H, Wright H, Magnusson J, Garabedian E, Marsh R, Sullivan KE, Keller M, USIDNET Consortium |
|
J Allergy Clin Immunol Pract |
2022 |
10(5) |
1334-1341.e6 |
Rheumatologic diseases in patients with inborn errors of immunity in the USIDNET registry |
Padem N, Wright H, Fuleihan R, Garabedian E, Suez D, Cunningham-Rundles C, Marsh RA, Khojah A |
|
Clin Rheumatol |
2022 |
41(7) |
2197-2203 |
O’Toole D, Groth D, Wright H, Bonilla FA, Fuleihan RL, Cunningham-Rundles C, Sullivan KE, Ochs HD, Marsh R, Feuille E |
|
J Clin Immunol |
2022 |
42(4) |
827-836 |
|
Pham MN, Fuleihan RL, Sullivan KE, Cunningham-Rundles C |
|
J Allergy Clin Immunol Pract |
2022 |
10(7) |
1788-1796 |
|
El-Sayed, ZA, El-Ghoneimy, DH, Ortega-Martell, JA, Radwan, N, Aldave, JC, Al-Herz, W, ... & Sullivan, K |
|
World Allergy Organization Journal |
2022 |
15(6) |
100657 |
|
Syed MN, Kutac C, Miller JM, Marsh R, Sullivan KE, Cunningham-Rundles C, Fuleihan RL, Kheradmand F, Hajjar J |
|
J Clin Immunol |
2022 |
42(7) |
1545–1552 |
|
Prevalence of coccidioidomycosis in primary immunodeficiency: Data from the USIDNET registry |
Krase IZ, Garabedian E, Fuleihan R, Sacco K |
|
J Clin Immunol |
2022 |
245 |
109135 |
Tran P, Gober L, Garabedian EK, Fuleihan RL, Puck JM, Sullivan KE, Spergel JM, Ruffner MA |
|
Front Immunol |
2022 |
13 |
Article 987895 |
|
Pickett G, Motazedi T, Kutac C, Cahill G, Cunningham-Rundles C, Fuleihan RL, Sullivan KE, Rider NL |
|
J Clin Immunol |
2021 |
41 (2) |
374-381 |
|
Crohn’s-like Enteritis in X-Linked Agammaglobulinemia: A Case Series and Systematic Review |
Khan F, Person H, Dekio F, Ogawa M, Ho HE, Dunkin D, Secord E, Cunningham-Rundles C, Ward SC |
|
J Allergy Clin Immunol Pract |
2021 |
9(9) |
3466-3478 |
Deshpande DR, Demirdag YY, Marsh RA, Sullivan KE, & Orange JS |
|
J Clin Immunol |
2021 |
41(1) |
29-37 |
|
Clinical disparity of primary antibody deficiency patients at a safety net hospital |
Wallace L, Ware M, Cunningham-Rundles C, Fuleihan R, Maglione P |
|
J Allergy Clin Immunol Pract |
2021 |
9(7) |
2923-2925 |
Humoral Immunodeficiency and Immune Globulin Replacement Therapy (IGRT) Usage in DiGeorge Syndrome |
Soshnick SH, Joseph T, Bennett NJ |
|
J Clin Immunol |
2021 |
41(6) |
1208-1212 |
Oh J, Garabedian E, Fuleihan R, Cunningham-Rundles C |
|
J Allergy Clin Immunol Pract |
2021 |
9(11) |
4095-4102 |
|
Pulmonary Disease Burden in Primary Immune Deficiency Disorders: Data from USIDNET Registry |
Patrawala M, Cui Y, Peng L, Fuleihan R, Garabedian E, Patel K, Guglani L |
|
J Clin Immunol |
2020 |
40(2) |
340–349 |
Lymphoproliferative Disease in CVID: a Report of Types and Frequencies from a US Patient Registry |
Yakaboski E, Fuleihan RL, Sullivan KE, Cunningham-Rundles C, Feuille E |
|
J Clin Immunol |
2020 |
40 |
524-530 |
Kuo CY, Garabedian E, Puck J, Cowan MJ, Sullivan KE, Buckley RH., ... & Kohn DB |
|
J Clin Immunol |
2020 |
40(8) |
1124–1131 |
|
Lee M, Nguyen J, Fuleihan R, Gundling K, Cunningham-Rundles C, Otani IM |
|
J Clin Immunol |
2020 |
40(8) |
1181–1183 |
|
Zhang S, Kline M, Fuleihan RL, Consortium U, Scalchunes C, Sullivan KE, Jongco AM |
|
Immunol Res |
2020 |
68(6) |
379–388 |
|
Lopes JP, Cunningham-Rundles C |
|
Immunol Allergy Clin North Am |
2020 |
40(3) |
385-402 |
|
Cellular Defects in CVID Patients with Chronic Lung Disease in the USIDNET Registry. |
Kellner ES, Fuleihan R, Cunningham-Rundles C, USIDNET Consortium, Wechsler JB |
|
J Clin Immunol |
2019 |
39(6) |
569–576 |
Yonkof JR, Gupta A, Fu P, Garabedian E, Dalal J, USIDNET Consortium |
|
J Clin Immunol |
2019 |
39 (4) |
448-458 |
|
Factors Beyond Lack of Antibody Govern Pulmonary Complications in Primary Antibody Deficiency |
Weinberger T, Fuleihan R, Cunningham-Rundles, C, Maglione, P |
|
J Clin Immunol |
2019 |
39(4) |
440-447 |
Correa-Jimenez O, Restrepo-Gualteros S, Villamil-Osorio M, Cunningham-Rundles C, Sullivan KE, Fuleihan R, Gutierrez, MJ |
|
J Allergy Clin Immunol |
2019 |
143 (2) |
AB13 |
|
Kelsen JR, Russo P, Sullivan KE |
|
Immunol Allergy Clin North Am |
2019 |
39(1) |
63-79 |
|
Mayor PC, Eng KH, Singel KL, Abrams SI, Odunsi K, Moysich KB, Fuleihan R, Garabedian E, Lugar P, Ochs HD, Bonilla FA, Buckley RH, Sullivan KE, Ballas ZK, Cunningham-Rundles C, Segal BH |
|
J Allergy Clin Immunol |
2018 |
141 (3) |
1028-1035 |
|
Autosomal Dominant Hyper-IgE Syndrome in the USIDNET Registry |
Gernez Y, Freeman AF, Holland SM, Garabedian E, Patel NC, Puck JM, Sullivan KE, Akhter J, Secord E, Chen K, Buckley R, Haddad E, Ochs HD, Fuleihan R, Routes J, Muskat M, Lugar P, Mancini J, Cunningham-Rundles C |
|
J Allergy Clin Immunol Pract |
2018 |
6 (3) |
996-1001 |
Autoimmune Cytopenias and Associated Conditions in CVID: a Report From the USIDNET Registry |
Feuille EJ, Anooshiravani N, Sullivan KE, Fuleihan RL, Cunningham-Rundles C |
|
J Clin Immunol |
2018 |
38 (1) |
28-34 |
Farmer J, Ong MS, Barmettler S, Yonker L, Fuleihan R, Sullivan K, Cunningham-Rundles C, Walter J |
|
Front Immunol |
2018 |
8 |
1740 |
|
Stonebraker JS, Hajjar J, Orange JS |
|
Vox Sang |
2018 |
113(5) |
430-440 |
|
Ruffner MA, USIDNET Body Weight Group, Sullivan KE |
|
J Clin Immunol |
2018 |
38 (3) |
283-293 |
|
|
|
|
|
|
|
|
Renal Disease in Chronic Granulomatous Disease: Data from the USIDNET Registry |
Sacco K, Garabedian E, Sullivan K, USIDNET Consortium, Joshi A |
|
J Clin Immunol |
2018 |
38 (5) |
556-557 |
Gutierrez M, Sullivan K, Fuleihan R, Bingham O |
|
Semin Arthritis Rheum |
2018 |
48(2) |
318-326 |
|
Leung J, Sullivan KE, Perelygina L, Icenogle JP, Fuleihan RL, Lanzieri TM |
|
J Clin Immunol |
2018 |
38 (6) |
717-726 |
|
Low Serum IgE Is a Sensitive and Specific Marker for Common Variable Immunodeficiency (CVID) |
Lawrence MG, Palacios-Kibler TV, Workman LJ, Schuyler AJ, Steinke JW, Payne SC, McGowan EC, Patrie J, Fuleihan RL, Sullivan KE, Lugar PL, Hernandez CL, Beakes DE, Verbsky JW, Platts-Mills TAE, Cunningham-Rundles C, Routes JM, Borish L |
|
J Clin Immunol |
2018 |
38 (3) |
225-233 |
Gastrointestinal Manifestations in X-linked Agammaglobulinemia |
Barmettler S, Otani I, Minhas J, Abraham RS, Chang Y, Dorsey MJ, Ballas ZK, Bonilla FA, Ochs HD, Walter JE |
|
J Clin Immunol |
2017 |
37 (3) |
287-294 |
Hajjar J, Guffey D, Minard CG, Orange JS |
|
J Clin Immunol |
2017 |
37 (2) |
153-165 |
|
Lack of Clinical Hypersensitivity to Penicillin Antibiotics in Common Variable Immunodeficiency |
Hartman H, Schneider K, Hintermeyer M, Bausch-Jurken M, Fuleihan R, Sullivan KE, Cunningham-Rundles C, Bonilla FA; USIDNET Consortium, Verbsky J, Routes J |
|
J Clin Immunol |
2017 |
37 (1) |
22-24 |
Two Sides of the Same Coin: Pediatric-Onset and Adult-Onset Common Variable Immune Deficiency |
Sanchez LA, Maggadottir SM, Pantell MS, Lugar P, Rundles CC, Sullivan KE, USIDNET Consortium |
|
J Clin Immunol |
2017 |
37 (6) |
592-602 |
de la Morena MT, Leonard D, Torgerson TR, Cabral-Marques O, Slatter M, Aghamohammadi A, Chandra S, Murguia-Favela L, Bonilla FA, Kanariou M, Damrongwatanasuk R, Kuo CY, Dvorak CC, Meyts I, Chen K, Kobrynski L, Kapoor N,... |
|
J Allergy Clin Immunol |
2017 |
139(4) |
1282-1292 |
|
Yonkof J, Gupta AO, Fu P, Garabedian E, Dalal JD |
|
Blood |
2017 |
130 |
671 |
|
Leven E, Maffucci1 P, Ochs H, Scholl P, Buckley R, Fuleihan R, Geha R, Cunningham C, Bonilla F, Conley ME, Ferdman R, Hernandez-Trujillo V, Puck J, Sullivan K, Secord E, Ramesh M, Cunningham-Rundles, C |
|
J Clin Immunol |
2016 |
36 (5) |
490-501 |
|
Perelygina L, Plotkin S, Russo P, Hautala T, Bonilla F, Ochs HD, Joshi A, Routes J, Patel K, Wehr C, Icenogle J, Sullivan KE |
|
J Allergy Clin Immunol |
2016 |
138 (5) |
1436-1439 |
|
Al-Herz W, Notarangelo LD, Sadek A, Buckley R; USIDNET Consortium |
|
Clin Immunol |
2015 |
161(2) |
170-3 |
|
Seeborg FO, Seay R, Boyle M, Boyle J, Scalchunes C, Orange JS |
|
J Clin Immunol |
2015 |
35 (7) |
638-50 |
|
Food allergy in patients with primary immune deficiency diseases: prevalence within the USIDNET |
Tuano KS, Orange JS, Sullivan K, Cunningham-Rundles C, Bonilla FA, Davis CM |
|
J Allergy Clin Immunol |
2015 |
135(1) |
273-5 |
Chronic non-bacterial osteomyelitis in a patient with common variable immunodeficiency |
Costa-Reis P, Weaver LK, Behrens EM, Sullivan KE |
|
Joint Bone Spine |
2014 |
81(2) |
193-4 |
Recent advances in transplantation for primary immune deficiency diseases: a comprehensive review |
de la Morena MT, Nelson RP Jr |
|
Clin Rev Allergy Immunol |
2014 |
46(2) |
131-44 |
Shearer WT, Fleisher TA, Buckley RH, Ballas Z, Ballow M, Blaese RM, Bonilla FA, Conley ME, Cunningham-Rundles C, Filipovich AH, Fuleihan R, Gelfand EW, Hernandez-Trujillo V, Holland SM, Hong R, Lederman HM, Malech HL, Miles S, Notarangelo LD, Ochs HD, Ora |
|
J Allergy Clin Immunol |
2014 |
133(4) |
961-6 |
|
USIDNET: A Strategy to Build a Community of Clinical Immunologists |
Sullivan KE, Puck JM, Notarangelo LD, Fuleihan R, Caulder T, Wang C, Boyle M, Cunningham-Rundles C |
|
J Clin Immunol |
2014 |
34(4) |
428-35 |
Al-Herz W, Al-Mousa H |
|
J Allergy Clin Immunol |
2013 |
131(3) |
658-60 |
|
Managing comorbid complications in patients with common variable immunodeficiency |
Ballow M |
|
Ann Allergy Asthma Immunol |
2013 |
111(6 Suppl) |
S6-9 |
Immunoglobulin deficiencies: the B-lymphocyte side of DiGeorge Syndrome |
Patel K, Akhter J, Kobrynski L, Benjamin Gathmann MA, Davis O, Sullivan KE, International DiGeorge Syndrome Immunodeficiency Consortium |
|
J Pediatr |
2012 |
161(5) |
950-3 |
Partial immune reconstitution of X-linked hyper IgM syndrome with recombinant CD40 ligand |
Jain A, Kovacs JA, Nelson DL, Migueles SA, Pittaluga S, Fanslow W, Fan X, Wong DW, Massey J, Hornung R, Brown MR, Spinner JJ, Liu S, Davey V, Hill HA, Ochs H, Fleisher TA |
|
Blood |
2011 |
118(14) |
3811-7 |
Fleisher T, Notarangelo L |
|
Clini Immunol |
2010 |
135(2) |
167-168 |
|
Yong PL, Orange JS, Sullivan KE |
|
Pediatr Allergy Immunol |
2010 |
21(5) |
852-8 |
|
Analysis of TACI mutations in CVID & RESPI patients with HLA-DQ2, -DR7, -DR3(17), -B8 or -B44 |
Waldrep ML, Zhuang Y, Schroeder HW Jr |
|
BMC Med Genet |
2009 |
10 |
100 |
Common variable immunodeficiency: a new look at an old disease |
Park MA, Li JT, Hagan JB, Maddox DE, Abraham RS |
|
Lancet |
2008 |
372(9637) |
489-502 |
Winkelstein JA, Conley ME, James C, Howard V, Boyle J |
|
Medicine (Baltimore) |
2008 |
87(5) |
253-8 |
|
Common variable immune deficiency: reviews, continued puzzles, and a new registry |
Cunningham-Rundles C, Knight AK |
|
Immunol Res |
2007 |
38(1-3) |
78-86 |
Subspecialty evaluation of chronically ill hospitalized patients with suspected immune defects |
Mehra A, Sidi P, Doucette J, Estrella L, Rouvelas H, Cunningham-Rundles C |
|
Ann Allergy Asthma Immunol |
2007 |
99(2) |
143-150 |
Population-based newborn screening for severe combined immunodeficiency: Steps toward implementation |
Puck JM, The SCID Newborn Screening Working Group |
|
J Allergy Clin Immunol |
2007 |
120(4) |
760-8 |
The health status and quality of life of adults with X-linked agammaglobulinemia |
Howard V, Greene JM, Pahwa S, Winkelstein JA, Boyle JM, Kocak M, Conley ME |
|
Clin Immunol |
2006 |
118(2-3) |
201-8 |
X-linked agammaglobulinemia: report on a United States registry of 201 patients |
Winkelstein JA, Marino MC, Lederman HM, Jones SM, Sullivan K, Burks AW, Conley ME, Cunningham-Rundles C, Ochs HD |
|
Medicine (Baltimore) |
2006 |
85 (4) |
193-202 |
Halsey NA, Pinto J, Espinosa-Rosales F, Faure-Fontenla MA, da Silva E, Khan AJ, Webster AD, Minor P, Dunn G, Asturias E, Hussain H, Pallansch MA, Kew OM, Winkelstein J, Sutter R; Polio Project Team |
|
Bull World Health Organ |
2004 |
82(1) |
3-8 |
|
Long-term interferon-gamma therapy for patients with chronic granulomatous disease |
Marciano BE, Wesley R, De Carlo ES, Anderson VL, Barnhart LA, Darnell D, Malech HL, Gallin JI, Holland SM |
|
Clin Infect Dis |
2004 |
39(5) |
692-9 |
Primary immunodeficiency: Looking backwards, looking forwards |
Shearer WT, Cunningham-Rundles C, Ochs HD |
|
J Allergy Clin Immunol |
2004 |
113(4) |
607-609 |
Itraconazole to prevent fungal infections in chronic granulomatous disease |
Gallin JI, Alling DW, Malech HL, Wesley R, Koziol D, Marciano B, Eisenstein EM, Turner ML, DeCarlo ES, Starling JM, Holland SM |
|
N Engl J Med |
2003 |
348(24) |
2416-22 |
The X-linked hyper-IgM syndrome: clinical and immunologic features of 79 patients |
Winkelstein JA, Marino MC, Ochs H, Fuleihan R, Scholl PR, Geha R, Stiehm ER, Conley ME |
|
Medicine (Baltimore) |
2003 |
82(6) |
373-84 |
Horwitz ME, Barrett AJ, Brown MR, Carter CS, Childs R, Gallin JI, Holland SM, Linton GF, Miller JA, Leitman SF, Read EJ, Malech HL. |
|
N Engl J Med |
2001 |
344(12) |
881-8 |
|
Razvi S, Schneider L, Jonas MM, Cunningham-Rundles C |
|
Clin Immunol |
2001 |
101(3) |
284-8 |
|
Rogers MH, Lwin R, Fairbanks L, Gerritsen B, Gaspar HB |
|
J Pediatr |
2001 |
139(1) |
44-50 |
|
Chanock SJ, Roesler J, Zhan S, Hopkins P, Lee P, Barrett DT, Christensen BL, Curnutte JT, Görlach A. |
|
Blood Cells Mol Dis |
2000 |
26(1) |
37-46 |
|
Chronic granulomatous disease. Report on a national registry of 368 patients |
Winkelstein JA, Marino MC, Johnston RB Jr, Boyle J, Curnutte J, Gallin JI, Malech HL, Holland SM, Ochs H, Quie P, Buckley RH, Foster CB, Chanock SJ, Dickler H |
|
Medicine (Baltimore) |
2000 |
79(3) |
155-69 |
Chanock SJ, Foster CB |
|
J Clin Invest |
1999 |
104(4) |
369-70 |