Abstracts — USIDNET

These abstracts all utilized USIDNET V1 registry data.

Title	Conference	Year	Name
Family History of Agammaglobulinemia Among Racial and Ethnic Minority Groups with X-linked Agammaglobulinemia from the USIDNET Registry	CIS	2023	O'Toole, Dana
Interstitial cystitis in common variable immunodeficiency: Could it be another autoimmune complication? A descriptive report	CIS	2023	Wang, Ban
Renal Complications in Patients with Predominant Antibody Deficiency in the United States Immune Deficiency Network (USIDNET)	AAAAI	2023	Materne, Emma
Prevalence of coccidioidomycosis in primary immunodeficiency: Data from the USIDNET registry	ESID	2022	Krase, Ifat & Sacco, Keith
Pneumonia in primary antibody deficiency patients receiving immunoglobulin therapy, risk factors, and role of prophylactic antibiotics: Data from the US Immunodeficiency Network (USIDNET)	CIS	2022	Hajjar, Joud
Who’s your data? Primary immune deficiency differential diagnosis prediction via machine learning and data mining of the USIDNET registry	CIS	2022	Saul Lugo Reyes
Outcomes Among Racial and Ethnic Minority Groups with X-linked Agammaglobulinemia from the USIDNET Registry	AAAAI	2022	O'Toole, Dana
Neurologic Manifestations reported in Autoinflammatory Disorders and Immune Dysregulatory Diseases from the USIDNET Registry	CIS	2021	Wagman, Elizabeth
Characterizing Neutropenia in Severe Combined Immunodeficiency	AAAAI	2021	Deshpande, Deepti
Mortality In Combined Immunodeficiency: Data From the USIDNET Registry	CIS	2021	Durkee-Shock, Jessica
The Interrelationship of CVID Gastrointestinal Manifestations, Autoimmunity, Splenomegaly and Lymphoproliferative Disease	CIS	2021	Wright, Hannah & Schussler, Edith
The other side of the coin: immunodysregulation in primary immunodeficiency. Analysis of the United States Immunodeficiency Network (USIDNET) database	CIS	2021	Chitty Lopez, Maria
Endocrine-Specific Autoimmunity in Primary Immunodeficiencies: a Report from the USIDNET Registry	CIS	2021	Pelletier, Teresa
CTLA-4 and CVID: Analysis of USIDNET Patients	CIS	2021	Ghannam, Sara & Fernandez, James
Association of GI status and Autoimmunity in CVID	CIS	2020	Wright, Hannah
Primary Immunodeficiency Diagnoses seen in Patients with Chronic Lung Disease: Findings from the USIDNET Registry	AAAAI	2020	Lee, Michael
X-Linked Agammaglobulinemia: Infection Frequencies in 226 Patients from the USIDNET Registry	AAAAI	2020	Groth, Daniel
CVID associated gastrointestinal disorders: a cohort analysis of disease phenotypes, functional status, comorbidities, and treatment	AAAAI	2020	Franzblau, Lauren & Wysocki, Chris
Characterizing Pneumocystis jirovecii Pneumonia in patients with Primary Immunodeficiency Disorders, Data from the US Immunodeficiency Network (USIDNET) Registry	AAAAI	2020	Ochfeld, Elisa
Relationship Between T Cell Lymphopenia Severity And Immune Dysregulation Among Patients With DiGeorge Syndrome	AAAAI	2020	Deshpande, Deepti
Chronic granulomatous disease with inflammatory bowel disease: Disease presentation, treatment, and outcomes from the USIDNET Registry	CIS	2020	LaBere, Brenna
Frequency of Myopathy in Primary Immunodeficiency: Data from the USIDNET Registry	CIS	2020	Sacco, Keith
Clinical characteristics and infectious complications in patients with rare forms of syndromic immunodeficiency: data from the USIDNET registry	CIS	2020	Kim, So Lim
Rheumatological Diseases in Patients with Primary Immunodeficiency Disorders in the USIDNET Registry	CIS	2020	Padem, Nurcicek
Replacement immunoglobulin trends amongst patients with CVID and concurrent autoimmunity: A report from the USIDNET registry	AAAAI	2019	Kennedy, Katie
Lymphoproliferative Disease in CVID: A Report of Types and Prevalence from a United States Patient Registry	AAAAI	2019	Yakaboski, Elizabeth
Health Disparities in CVID: A Report of 1,546 patients from the USIDNET Registry	CIS	2019	Shrestha, Pragya
Describing Transient T cell lymphopenia in the United States Immunodeficiency Network (USIDNET) Following Infants with Low Lymphocytes (FILL) Program and a Single Referral Center from 2010-2017	CIS	2019	Zhang, Shouling
Immunodeficiency in Elderly: Data from the USIDNET Registry	CIS	2019	Patel, Charmi
Granulomatous disease and lymphoma in a cohort of 1395 patients with CVID in the USIDNET Registry	CIS	2019	Matias Lopes, Joao Pedro
Clinical and laboratory features of thymoma and immunodeficiency (Good's syndrome): a report from the USIDNET registry and the Mount Sinai Hospital cohort	CIS	2019	Ho, Hsi-en
Eosinophilic Gastrointestinal Disease in Patients with Primary Immunodeficiency	CIS, AAAAI	2018	Ruffner Melanie
Neurologic Complications of Common Variable Immunodeficiency: Findings From the USIDNET Registry	CIS	2018	Nguyen, Jenna
Cellular Defects Amongst CVID Patients with Chronic Lung Disease in the USIDNET Cohort	CIS, AAAAI	2018	Kellner, Erinn
Pulmonary Disease Burden in Primary Immune Deficiency Disorders from the USIDNET Patient Registry	ATS	2018	Mehta, M
Predictors of persistent respiratory infections in patients with primary antibody deficiency, data from the US Immunodeficiency network (USIDnet)	AAAAI	2018	Hajjar, Joud
Infectious and Non-infectious Pulmonary Complications of Primary Immunodeficiency Diseases in the USIDNET Registry	AAAAI	2018	Rohr, Kaileen & Yu, Joyce
Incidence of reactivated Herpes Zoster (shingles) in patients with Primary Immune Deficiency	AAAAI	2018	Lindsay, David
Renal Disease in Chronic Granulomatous Disease: Data from the USIDNET Registry	AAAAI	2018	Sacco, Keith
COMORBID VASCULITIS AMONG PATIENTS IN A NATIONAL PRIMARY IMMUNODEFICIENCY DATABASE	ACR/ARHP	2018	Byram, Kevin
Neutropenia Is an Under-Recognized Finding in Pediatric Primary Immunodeficiency Diseases: An Analysis of the United States Immunodeficiency Network Registry	ASH	2018	Michniacki, Thomas
Evaluating Behavioral Problems in Patients with Primary Immunodeficiency Disorders within the US Immunodeficiency Network Registry	ACAAI	2018	Jose, Jaison
Clinical Findings of Patients with Autonomal Dominant Hyper IgE Syndrome (HIES) in USIDNET	AAAAI	2017	Gernez, Yael
Atopic Disease in Primary Immune Deficiency with B Cell Dysfunction Amongst A USIDNET Cohort	AAAAI	2017	Harmon, Gretchen
Broadening Our Understanding of the Noninfectious Disease Complications of CVID Within the United States	CIS	2017	Farmer, Jocelyn
Ocular manifestations in primary immunodeficiency (PID) patients within the USIDNET registry	ACAAI	2017	Pham, Michele
Differences in Pulmonary Complications in Common Variable Immunodeficiency and X-Linked Agammaglobulinemia	AAAAI	2017	Weinberger, Tamar
Early Transplant Improves Outcomes in Patients with Chronic Granulomatous Disease: Results from United States Immunodeficiency Network (USIDNET)	ASH	2017	Yonkof, Jennifer
Tertiary Care Patients with Common Variable Immune Deficiency (CVID) Are at Similar Risk for Noninfectious Complications: A Comparative Cohort Analysis Between Partners-Affiliated Hospitals in Bos	CIS	2016	Farmer, Jocelyn
Using EMR Data Collections to Outline SCID Clinical Phenotypes	AAAAI	2016	Agarwal, Shradha
Prevalence of Atopic Diseases in Patients with Humoral Primary Immunodeficiency: A Comparison of a Single Center and the US Immunodeficiency Network (USIDNET)	AAAAI	2016	Chau, Alice
Body Weight and Infectious Outcomes in Patients with Primary Immunodeficiency Diseases: Outcomes from within the US Immunodeficiency Network (USIDNET)	AAAAI	2016	Ruffner, Melanie
Extra-Immunologic Manifestations of Common Variable Immunodeficiency in Pediatric Versus Adult Patients	AAAAI	2016	Sanchez, Lauren
Immunoglobulin Management Approaches in American Patients with Common Variable Immune Deficiency and Autoimmunity	ACAAI	2016	Kennedy, Katie
Cancer in Primary Immunodeficiency Diseases: An Analysis of Cancer Incidence in the United States Immune Deficiency Network (USIDNET) Registry.	ASCO	2016	Mayor, Paul
Clinical Characteristics and Diagnosis in Patients with Predominantly Antibody Deficiencies: Baseline Features of Patients Enrolled in the United States Immunodeficiency Network (USIDNET) Registry	CIS	2016	Antonio, Albert
Increased Incidence of Fatigue in Primary Immunodeficiency Disorders, Prevalence and Associations within the USIDNET Registry.	CIS	2016	Hajjar, Joud
Evaluation of Penicillin Hypersensitivity in Patients with Common Variable Immunodeficiency	CIS	2016	Hartmann, Heather
Hyper IgM Syndrome: A Report from the USIDNET Registry	CIS	2016	Leven, Emily
Inflammatory Bowel Disease in X-Linked Agammaglobulinemia	CIS	2016	Otani, Iris
Gastrointestinal Presentations in Patients with CVID	CIS	2016	Schussler, Edith
Patient Reported Outcomes in PI: PROMIS 29 – QoL Survey Utilizing the IDF Electronic Personal Health Record (ePHR) Platform	CIS	2016	Sullivan, Kathleen
The Natural History of Children with Agammaglobulinemia and Hypogammaglobulinemia: Baseline Features of Patients Enrolled in the United States Immunodeficiency Network (USIDNET) Regist	ESPR	2016	Antonio, Albert
Intravenous immunoglobulin-related thromboembolic events – an accusation that proves the opposite	7th International Immunoglobulin Conference	2014	Basta, M
Indications of Autoimmunity and Auto-Inflammation in X-Linked Agammaglobulinemia	AAAAI	2013	Hernandez-Trujillo, Vivian
Dose Evaluation for Immunoglobulin Replacement Therapy	CIS	2013	Berger, Melvin
Development of Atopic Diseases in Patients with Primary Humoral Immunodeficiency	AAAAI	2012	Jongco, Artemio
Creation of the United States immune deficiency research network (USIDNET)	AAAAI	2005	Cunningham-Rundles, Charlotte, et al.
X-linked agammaglobulinemia: Clinical features of 148 patients from a United States national registry	AAAAI	2005	Winkelstein J, et al.

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